Honoring Loss Moms – Lindsey’s Story

Since starting this with The Nest On Main, we’ve received so many loss Moms reaching out to us wanting to share their stories. We are so honored they’ve asked us to do this for them. Lindsey is one of those that contacted us, and we are so glad she did.

Name– Lindsey

Angel baby– Londyn Harper

Type of loss– Infant loss

Home state– Texas

Best advice you’ve received– Don’t waste your pain.

Favorite place you’ve ever visited– Orange Beach, AL

Biggest accomplishment– being a mom

Ways you honor your angel– My husband and I just finished hosting our annual softball tournament and raffle in memory of Londyn. All of our proceeds benefit charities dealing with CHD and pulmonary hypertension research; both of which she had.

Describe yourself in 4 words– stubborn, determined, outspoken, strong

What food you’ve never tried and why– I eat pretty much everything. 🤷🏼‍♀️

What inspires you– Londyn inspires me every day. She was a true fighter until the end.

 -Londyn’s Story-

After what we thought was a normal, uncomplicated pregnancy Londyn was born via scheduled C-section on August 12, 2015 in Victoria, Texas. At birth, she was blue and not breathing. She was soon diagnosed with a congenital heart defect called total anomalous pulmonary venous return or TAPVR. She was life flighted to Driscoll Children’s Hospital in Corpus Christi. Twenty four hours after birth she underwent emergency open heart surgery. She spent 44 days in the NICU recovering. On September 25, 2015 we took Londyn home. On December 1, 2015 my mom and I took Londyn to Driscoll for a high risk appointment. There, the doctors and nurses saw she was blue around her mouth and eyes and her oxygen saturation was in the low 70s. She was admitted. On December 8, she had her second open heart surgery to open up the pulmonary veins that had started to close off. At this time, they discovered she also had pulmonary hypertension. We went home on December 19 with home oxygen. She was admitted again on Christmas morning. We were discharged on December 29. On January 6, 2016, we noticed Londyn was struggling to breathe. We took her back to Driscoll. The staff there did their absolute best to help her, but her pulmonary hypertension was too much for them to handle. She was transferred to Texas Children’s on February 22. The outstanding staff at TCH did everything they could for our warrior. But, on April 14, 2016 Londyn lost her fight to pulmonary hypertension. Her heart was tired. Her little body couldn’t fight anymore. Our forever perfect, sweet angel. She inspired and touched so many people in her short 8 months of life. We are so very proud to get to call her our daughter.

Londyn loved:

Her big sister

Her signature pink dino

Big bows

Her pacifier

Paw Patrol


Looking at books

Londyn has a Facebook page called Londyn’s Heart Journey that detailed her life and death.

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